The Michigan Medicine MiGHT (Michigan Genetic Hereditary Testing) Cancer Study

Michigan Medicine is seeking individuals who have recently been diagnosed with cancer, or who have a family history of cancer. Researchers are creating a genetic library to identify markers which correlate with a variety of cancers:

https://info.mightstudy.org/

MiGHT (Michigan Genetic Hereditary Testing) Study

Reducing Cancer’s Impact through Genetic Testing

What is MiGHT?

The MiGHT (Michigan Genetic Hereditary Testing) Study is a statewide effort to better identify and care for individuals and families with inherited risk of cancer.

We are testing ways to:

* Improve family history collection by healthcare providers
* Guide people through the process of genetic testing

About the study

Testing for inherited susceptibility to cancer has been available for over 20 years, but uptake remains low among even patients at high risk. It is now well-established that between 1 in 5 and 1 in 20 patients with breast, ovarian, endometrial or colorectal cancers has a deleterious germline mutation conferring inherited susceptibility to cancer.

Despite advances in genetic testing technologies and a decrease in the cost of testing, the uptake of testing among eligible patients with cancer remains unacceptably low. There is thus a gap between actual and ideal care with implications for primary and secondary cancer prevention and treatment in people with an inherited susceptibility and their family members.

The MiGHT study leverages diverse, statewide partnerships among healthcare and public health entities to employ both practice- and patient-level interventions to improve family history collection and uptake of genetic testing, with the overarching goal of reducing cancer morbidity and mortality.

Why is a family health history helpful? What information do I need?

Family history is often the first clue that a hereditary cancer condition is running in the family. The most important pieces of information are (1) the specific types of cancer in your relatives and (2) ages of diagnosis. Most cancers do not have a hereditary cause, but knowing your family history can help your healthcare provider determine if you might benefit from genetic testing, inform your treatment decisions, and ultimately take better care of you and your family.

How do I access the Family History Survey?

There are two ways to access our family cancer history survey.

1. If you are a patient at an oncology practice in the state of Michigan that participates in the Michigan Oncology Quality Consortium (MOQC), you may receive an email or text notification from your provider with a link and unique access code to take the survey in advance of your appointment.

2. If you aren’t sure if your oncology clinician participates in MOQC, or you haven’t personally been diagnosed with cancer but have family members who have, and you would like to use our secure survey to document and share your family’s cancer history, then you can get started on your own. To begin documenting your family’s cancer history register yourself today.

You can access the survey on any device with an internet connection, such as your computer, tablet, or mobile phone. All internet browsers are supported. Once you’ve submitted your responses, you will be able to save or print a pdf of your report to share with loved ones and trusted healthcare providers.

How long does it take to complete the survey?

The time it takes depends on the size of your family and the number of cancers. The survey takes most people less than 20 minutes. It may take some time to gather the information needed to answer the survey questions (for example the cancer types or ages of relatives).

How do I save information? Can I stop and go back in later?

Your survey responses will automatically save. You can close out of the survey and go back in at any time and the survey will pick up where you left off until you submit your final answers.

I don’t know the answers to some of the questions—what should I do?

It is OK if you do not know all the information! Most questions have a “do not know” or skip option. However, the more information you can find out, the more accurate your results will be, so please make your best estimate whenever possible. Any information you have will be helpful.

Is my information private?

We are committed to your privacy. Unless you give the MiGHT study team permission, only you, the operators of the MiGHT database, and your healthcare provider – if asked to complete the survey by your provider – will have access to your survey results. Your information will be protected by the privacy policies of your healthcare provider and Michigan Medicine. For more information see http://www.uofmhealth.org/patient+and+visitor+guide/hipaa.

Can I get a copy of my results?

Yes, at the end of the survey you will be able to print your results. These results contain personal health information about you and your relatives. If you choose to share your results we recommend you take reasonable precautions. For example, you might encrypt the information before sending it over email.

What do my results mean?

The survey tool does not provide medical advice. The information collected will be useful when discussing with your healthcare provider. In some cases, your provider may recommend further genetic evaluation.

Have more questions?

Contact our team at might@moqc.org