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Michigan healthcare freedom community forum
Twila Brase of the Citizens Council for Health Freedom (CCHF) pins down health privacy issues. No privacy, no freedom.
If you trust on HIPAA to protect your privacy (and freedom) - don't. The reasons are briefly listed in her May 3, 2023 CCHF e-News, copied below.
I recommend subscribing - it's free. You won't see research like it anywhere else.
– Commentary –
The HIPAA Lie — The Deliberate Deception
In a recent video, I discussed the virtually unknown national medical records network that’s been set up by the federal government. This distributive data system was made possible by 1996 HIPAA (elimination of privacy rights) and the 2009 EHR mandate (digitization of patient data). Here are five facts you need to know. The eHealth Exchange (EE) is:
- “The largest healthcare information network in the country.”
- “A Network of Networks . . . connecting federal agencies and non-federal healthcare organizations so medical data can be exchanged nationwide to improve patient care and public health.”
- “Seamlessly sending millions of COVID-19 testing and diagnoses reports to the CDC, and other national and state agencies.”
- Connecting healthcare providers nationwide with five federal agencies: HHS, DOD, FDA, SSA, and IHS.
- A network of 72 regional and/or state health information exchanges (HIEs), 5 federal agencies, 70,000 medical groups, 5,800 dialysis centers, and 75% of all U.S. hospitals – so far.
The eHealth Exchange video (scroll down) claims that your data is only distributed with consent. Here are four reasons why this may not be true:
- Most state legislators, thinking HIPAA protects privacy, conform state law to HIPAA.
- HIPAA permits a free flow of information — without patient consent.
- Patient consent forms are typically consolidated and coercive. They include consent for treatment, consent to be billed, and a plethora of data-sharing consents — and a single signature line. Most people feel compelled to sign the form “as is” to get the treatment they need.
- Have YOU heard of the eHealth Exchange? If no one knows it exists, how could patients have consented to it sharing their data?
Go online and see if your clinic or hospital participates. Here are just a few of the participants found on the eHealth Exchange website: Bozeman Health, Cincinnati Children’s Hospital, Cleveland Clinic Foundation, Denver Health, Emory Healthcare, Henry Ford Health System, HealthPartners (MN), Loma Linda University Health, Mayo Clinic, New York University Langone Medical Center, NorthShore University Health Care, Sanford Health, Seattle Children’s Hospital, and the Veterans Administration.
Thanks to your continued support, we were able to expose HIPAA throughout the month of April. As always, we are grateful for the opportunity to work towards protecting doctor and patient freedom all year long.
BONUS: Don't miss the fascinating Model State Legislation Library of options to defend healthcare freedoms.
https://www.cchfreedom.org/publication.php/28/
Morning Brew captures the ease with which Big Health and Big Tech evade federal HIPAA regulations.
Ray Mina on patient data privacy in healthcare marketing
Healthcare marketers must find a way to leverage social media sites while maintaining patient privacy, Mina said.
This week’s Making Rounds spotlights Ray Mina, head of marketing at Freshpaint, a company that helps healthcare marketers collect patient data while staying HIPAA compliant. Mina talked about how recent federal guidelines around the HIPAA privacy rule and data privacy have changed healthcare marketing, and how Freshpaint helps health startups and health systems navigate those changes.
This interview has been lightly edited for length and clarity.
How would you describe your job to someone who doesn’t work in healthcare?
I help marketers at leading healthcare providers navigate the recent HIPAA changes that have derailed many of their digital marketing strategies overnight.
Back in December 2022, the Department of Health and Human Services (HHS) made a clarification around the tracking technologies that power the ad ecosystem—that includes Google Analytics for measurement, Facebook ads, Google ads, you name it. HHS basically said that those tracking technologies are actually capturing patient information that violates HIPAA. When that guidance came down, healthcare legal and compliance teams went to marketing teams and told them to simply remove all of those tracking pixels overnight. We heard from people who said that they spent seven years building a culture of data to drive engagement with consumers, and that went away overnight.
We help small health tech startups all the way to very large hospital systems in the US promote access to healthcare and promote their services while also keeping privacy in mind.
How exactly does Freshpaint help healthcare companies navigate these data privacy changes?
Most marketers that are doing business-to-consumer marketing, like healthcare, leverage a lot of first-party behavioral data (meaning what we’re doing as users on their website). But in healthcare, marketers need to be concerned with HIPAA. They need a platform that helps them collect the behavioral data, and makes sure it’s governed in such a way that it doesn’t send the wrong data that might get them in trouble with regulators. That’s what Freshpaint does.
Before December 2022, we were focused on helping digital health startups create better experiences for their patients by leveraging first-party data in a HIPAA-compliant way. But in December, when HHS updated HIPAA guidelines around ad platform tracking technologies, traditional healthcare providers contacted us for help. It’s been one of the most rewarding moments in my career—helping other marketers go from not knowing the path forward to discovering a way to protect patient privacy, while also achieving their goal of improving access to healthcare through the search and ad platforms where they’ve grown accustomed to reaching their audience.What healthcare trend are you least optimistic about and why?
While protecting patient privacy is critical as we move forward in a more complex world, we must balance it with our desire to create awareness of new treatments, medicines, and preventative healthcare. Like it or not, patients don’t read the New England Journal of Medicine. They rely on a Google search or Facebook and other social media sites. We can’t turn away from those platforms. Instead, we need to find a way to leverage them while keeping patient data safe.
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